Tuesday, June 16, 2009

Episodes

I am starting to feel like Lacy is having too many of her episodes.

5/21/09 - Her first episode. Called 911 and spent two days in the hospital. Witnessed by me, Joe and Alicia.

6/10/09 - At Flancer's for dinner. She started crying when (I think) she hit her bum on the table. I couldn't get her to stop crying and she had a full episode. Joe and I took turns outside with her until everyone was finished with dinner. When we got home she slept for 12 ½ hours. Jono and Joy witnessed this one with us.

6/11/09 - At mom's house. She started to turn blue, but when mom picked her up she took a breath and cried normally. She started to turn blue in the car when we were leaving, but got what she wanted (a juicy juice) and stopped crying again.

6/15/09 - At Swim Kids. Joe let Lacy play in the pool for a little while, then got her dried off and redressed. She wanted to go back in and I wouldn't let her. She started crying. Joe took her from me and said he almost got her to avoid it by continually breathing in her face. She had another episode, complete with a seizure lasting a couple of minutes. She fell asleep on my chest afterward. When we got home she went straight to bed and slept for at least 13 hours.

One common thing about all of these episodes is that they were all around 7 or 7:30 at night. I don't think she has ever done this at any other time of the day.

I am going to try to get one on video. The neurologist at the hospital said it would be helpful. He gave us his card and I'm debating on whether or not to call him back to let him know how often it is happening. I don't know if that is normal. The research I have done said that kids grow out of it by the age of 5 or 6. Once a week for 4 years?? I don't think so! There has GOT to be a better way.

7 comments:

Taylor K said...

that is so scary. I'm sorry you're having to go through this! Thinking of you and your family.....

Sharron said...

This has to be so frightening, I am glad that you are addressing the problem and not just accepting it. Good luck in finding answers.

JIll said...

I'm so sorry, I can't even imagine it. I hope you can get it on tape and get some answers. Good luck.

Mower Power said...

Crazy! This is like nuts! I agree with your other commenter...glad you are looking further into it and not just accepting what they first said...just in case! Keep us posted! We'll be thinking of you!

Charles and Courtney said...

Goodness, I didn't know that it was happening so often. I thought it was just the one time thing. Sorry you guys are having to deal with that. Hope it gets better.

Taya said...

I really hope it gets figured out for her & you guys! Too scary... I am thinking of you all!!! Let us know if there is anything you need.

Mariah said...

My goodness what a scary time for you guys. Even if, after all is said and done, it's breath holding, that is scary! I hope you can find some definitive answers. Good Luck.